Well I think…I know it has been too long since I have been
here! I am not sure why I took such a big break…I think part of me was enjoying
never having to update people because I was always doing so well…there was no
bad news to explain or complicated surgeries/meds we were dealing with. I was
just loving being normal…well normal enough for me.
Today I write to report that my scan yesterday went well…tumor
has not changed but we found a “ditzel” in there. A “ditzel” is not a medical
term it is just what Shapiro used to tell us that there is something in there
that is a little odd. He said it is a vein, scar tissue, or tumor but he is
doubtful it is tumor because tumors grow in a circular shape usually and this
is oblong… So we are not too worried and we are just going to watch it…what
else can you do? I count it as a good report! J
Yesterday when I walked into the MRI place who did I see
sitting waiting for their MRI?? My neighbor! Four doors down lives my neighbor/home
teacher and he was scheduled for an 11:30 MRI and we ended up lying in machines
in neighboring rooms. I would much rather stay neighbors in our neighborhood
rather than MRI machines! Then we both went over to our Neuro Oncologist's office…yes
we share the same oncologist…sad if you ask me.
I have heard there are many who still keep people like me in
their prayers and I am humbled by your long term love and support. Please include
Chuck Buckhannon in your prayers as well. We are tumor buddies and he needs your
prayers.
Another tumor buddy I have met is David Baker. He lives in
California but has many relatives that live close to me so I have been lucky
enough to spend some time with him. David is a fellow GBM tumor buddy. He was
diagnosed 2 years after me and is on the same treatment cycle for the most
part. Meeting David Baker will be a memory I will never forget. I was able to
sit there and talk to a man who was walking what I have walked and who also
shares my beliefs. I loved sitting and talking to him about everything and I learned
so much about me and about who I want to be from talking to him. At first I was a little nervous to talk to
him because he was so much older than I was…I was thinking that we would not
have much to talk about and it could be awkward…. 2 hours later we were still
talking to him and his family and invited to their house for Thanksgiving…and
then of course we were there the next day for a few hours…needless to say there
was not a moment of awkwardness!
It is amazing how fast you feel connected to people who are
traveling your same road.
David Baker needs your prayers as well…I am going to make your
list so long!!! J
We can all just be the Brain Tumor Group!
So a lot has happened in the last 6 months and I will share
pictures of my long beautiful (well long for me! J)
hair and all our other adventures that include me being so normal people would
never guess I am part of the Brain Tumor Group!
I have started playing the piano again and typing will surely
help the agility in my left hand continue to improve so I guess it is time to
start up the blog again but this time I want to only report how amazingly
normal enough my life is.
I do not have any pictures on my computer so I will have to
add a few the next time I write…and it will not be 6 months away!!
Love,
Me
1 comment:
Tara! YOU are amazing! love you!
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