Well I think…I know it has been too long since I have been here! I am not sure why I took such a big break…I think part of me was enjoying never having to update people because I was always doing so well…there was no bad news to explain or complicated surgeries/meds we were dealing with. I was just loving being normal…well normal enough for me.
Today I write to report that my scan yesterday went well…tumor has not changed but we found a “ditzel” in there. A “ditzel” is not a medical term it is just what Shapiro used to tell us that there is something in there that is a little odd. He said it is a vein, scar tissue, or tumor but he is doubtful it is tumor because tumors grow in a circular shape usually and this is oblong… So we are not too worried and we are just going to watch it…what else can you do? I count it as a good report! J
Yesterday when I walked into the MRI place who did I see sitting waiting for their MRI?? My neighbor! Four doors down lives my neighbor/home teacher and he was scheduled for an 11:30 MRI and we ended up lying in machines in neighboring rooms. I would much rather stay neighbors in our neighborhood rather than MRI machines! Then we both went over to our Neuro Oncologist's office…yes we share the same oncologist…sad if you ask me.
I have heard there are many who still keep people like me in their prayers and I am humbled by your long term love and support. Please include Chuck Buckhannon in your prayers as well. We are tumor buddies and he needs your prayers.
Another tumor buddy I have met is David Baker. He lives in California but has many relatives that live close to me so I have been lucky enough to spend some time with him. David is a fellow GBM tumor buddy. He was diagnosed 2 years after me and is on the same treatment cycle for the most part. Meeting David Baker will be a memory I will never forget. I was able to sit there and talk to a man who was walking what I have walked and who also shares my beliefs. I loved sitting and talking to him about everything and I learned so much about me and about who I want to be from talking to him. At first I was a little nervous to talk to him because he was so much older than I was…I was thinking that we would not have much to talk about and it could be awkward…. 2 hours later we were still talking to him and his family and invited to their house for Thanksgiving…and then of course we were there the next day for a few hours…needless to say there was not a moment of awkwardness!
It is amazing how fast you feel connected to people who are traveling your same road.
David Baker needs your prayers as well…I am going to make your list so long!!! J We can all just be the Brain Tumor Group!
So a lot has happened in the last 6 months and I will share pictures of my long beautiful (well long for me! J) hair and all our other adventures that include me being so normal people would never guess I am part of the Brain Tumor Group!
I have started playing the piano again and typing will surely help the agility in my left hand continue to improve so I guess it is time to start up the blog again but this time I want to only report how amazingly normal enough my life is.
I do not have any pictures on my computer so I will have to add a few the next time I write…and it will not be 6 months away!!