Man, did we waver… back and forth after talking to each doctor. The decision we made was an incredibly hard one but we both feel it is the correct choice.
Lobectomy- Dr. Smith is going in again. (If you have been counting, it is brain surgery #9). He is going to take out my right occipital lobe and hopefully all the cancer in it. Smith is going to be aggressive. This will take my left peripheral vision but my left leg and memory should be fine. I went to the zoo today and walked around a lot! You all can call me an air head…I will be missing a lot more of that right side of my brain but I should function okay! Josh can still love me and I can still momma my babies.
Brachytherapy- radiation delivered straight to the cells instead of beam therapy (which is what I had last time). Smith will create a cavity by resecting brain tissue and then will fill it with the brachytherapy seeds.
It is a big surgery but we’re hoping this aggressive approach will pay off… we’re playing the long game over here.
I think we have driven all the doctors crazy this week. We had Smith call us personally in NM and then Kennedy and Yoo did the same. A week later we had in person visits hashing out all the same stuff again. We had different doctors telling us different things to do and we were stuck in the middle choosing between them all! It was incredibly stressful but we have reached a decision. As we called to tell the doctors we weren’t going through with their plans we were met with plenty of kick back but the truth is, what they are currently doing, isn’t working… it isn’t so we are going to Ty something new… this is not protocol but Smith firmly believes this will be protocol in coming years. There is so much more that has gone on this week…I could write a book but am don’t want to over do my eyes/processing power.
So yes, I am having surgery and yes I am having radiation…just delivered a different method.
Yes to the chemo…that will hopefully start March 9th.
Yes to the opting cap… that will start March 9th. https://www.optune.com/recently-diagnosed/get-to-know-optune
Yes to me having a better attitude. I don’t want to waste a day.
YES to Josh being here. LOVE him.
YES to my kidlets here!!
Surgery is the 16th. ( I could go on and on about the date but I will let you off early.)
Let’s quit while I am ahead and seizure free.
If I am doing well Ill share our fellowship update tomorrow.
Love, Me
